OLDŘICHOVICE a Check for twelve thousand crowns before winning the match with Basia (8:2) devoted to Mark and Darině Lubowieckým players Oldřichovic. Almost two-year-old girl their teammate Joan suffers from a rare disease.
Through the project, the Patron saint of children in the CZECH republic for Joan Lubowieckou inspired over 19 thousand crowns. Girl needs a hearing aid, which works out to 112 thousand rubles – 80 percent is paid by the insurance company.
Twelve thousand Lubowieckým contributed football Oldřichovice – players the a’s, youth team, coaches and officials. The little girl also received a large teddy bear in the jersey of the leader of the county championships.
Joan was born with Hay Wells syndrome, which suffer from only two children in the Czech republic. She was born with the burned head, back and limbs. All my life so will carry with it an extensive infection of the skin. In the context of her disease also has webbed toes on the right foot. In December last year, was also in surgery with rozštěpovou defect.
Girl not in the sun or in the freezing cold, do not swim in public swimming pools. Because of the burns on the header probably will never have hair, grow her fingernails. Has only canines can’t chew, the food her parents mixují. The disease has an effect on Johančino bad gaining weight – she will always be tiny and petite.
Another major complication of Joan’s deteriorating hearing. Suffer from frequent infections of the ears, in which she threatens to cease to hear it altogether. Her parents told her every morning, afternoon, and night, treating the ears and other parts of the body, the contested infections with special creams. To the little girl, despite the deteriorating sense of hearing could communicate, he needs a hearing aid.
Images: Svatopluk Gander Actually